By Louise Kinross
Take a look at our August issue.
Here are some highlights:
-Victoria Rombos, who coordinates our Sibling Support Program, shares a personal story about her family’s inability to get a night nurse for her sister, who uses a trache, for almost two months, which means her mother may only get one to two hours of sleep a night. We look at the crisis in home care in a variety of jurisdictions. (See Home Care)
-A Statistics Canada study on earnings potential for Canadians with childhood disability found the largest income growth differences between men with and without childhood disability who had university degrees. They also found people with learning, developmental, mental health or memory disabilities had earnings that grew less quickly than those with physical disabilities, regardless of their sex or level of education. (See Research Hits)
-American parents of children with disabilities and complex medical problems said clinicians discriminated against their child in a new study in Pediatrics—the first to look at parent perceptions of disability bias in health care. We interview the lead author, a critical-care doctor at University of Utah Health. (See Health Equity)
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Victoria Rombos (left) with sister Chrysoula and mother Mary. By Louise Kinross The other day my colleague Victoria Rombos dropped by to say her family has struggled for almost two months without a night nurse for her sister Chrysoula, 24. Chrysoula, who has seizures and a feeding tube, relies on a surgical opening in her...
Alifa Khan (right) and son Junayd By Louise Kinross Alifa Khan talks about how she parented before and after she learned about acceptance and commitment therapy (ACT). Her son Junayd, 15, has autism. Before, “I would ruminate a lot on trying to come up with the perfect solution,” she says. “It was an endless pursuit...